Another Health Scare

Just wanted to let you know that we had to bring Isaac to the hospital again two weeks ago. He had another hypoglycemic episode overnight, and in the morning he had some more seizure-like activity. He wasn't admitted this time, but we were able to move the geneticist appointment up. He told us that some of Isaac's labs are a little funky and we got some more bloodwork this past weekend. These are genetic, chromosomal tests and need to be sent off. We won't get back results for 6-8 weeks. He did tell us what he's thinking, but he also warned that he doesn't have a lot of information yet. He's thinking possibly a glycogen storage disease or a mitochondrial disorder. I only know about glycogen, nothing about mitochondrial disorders. And I'm not going to kill myself trying to figure it out.

For now, we're just praying for the best and taking care of our boy in the meantime. He's doing great as you can see by all the pics.Now that we've had an episode at home, we're much more prepared. I have been checking his glucose in the middle of the night and if it's already dipping, then we have to wake him up and feed him. Other than that, we're armed with glucose gel that we can rub in his mouth to get his glucose up quickly. I also have glucagon that I can inject in his thigh if I can't get it up and the seizure is not stopping. Hopefully I won't ever have to use that.

Please keep us in your thoughts and prayers. We have trust in God :)