Family Update - Isaac

Isaac has become quite the big brother to Elliot. He helps to keep him safe while also being a bit rough at times. I can't believe it but he just started first grade! He's doing really good at reading and is starting to get into math. Right now he's really into legos, especially Star Wars legos. And he's gotten very good at building things on his own. Now that Andrew is working on this side of the lake, closer to Isaac's school, he has been able to start an after school activity - KARATE! He's so excited. It seems like a really good program and is helping with focus and discipline.He's also recently lost two of his teeth, which he was really excited about. Isaac makes us laugh daily. It's funny how observant he is.

On Fourth of July weekend, Isaac had yet another hypoglycemic episode while we were visiting with Tat and Omi. He went to sleep that Saturday night without taking his cornstarch and the next morning, he was seizing. Once again, we found ourselves in an ambulance. This time, spending the night for observation. He followed up with an endocrinologist and nothing was found. Not sure if I shared this but last fall he was diagnosed with a genetic disorder of PTEN sequencing. It's called Bannayan-Riley-Ruvalcaba syndrome. Say that 5 times fast :). In a nutshell, it puts him at risk for noncancerous tumors called hamartomas. He has to have a skin check by a dermatologist and a thyroid ultrasound each year. We're planning on the skin check in October and the ultrasound checked out ok. According to the geneticist, the hypoglycemia should NOT be linked to this disorder. He did find ONE research article that may support a connection. We enrolled Isaac into a study for another cause of the hypoglycemia.

Right now, he still has a diagnosis of exclusion - ketotic hypoglycemia.

Here are some pics from Isaac over time since  my last post. We're gearing up for his 6th birthday party in a few weeks!

 Playing in the "snow" during the big freeze

 

 

 Mother's Day (He insisted on wearing a tie for the "fancy" day)

 

First day of First Grade:

Elliot's First Fourth of July

This year is going by so quickly! For the Fourth of July, we decided to stay on the northshore, and we went to the Mandeville Seafood Festival for good food, music, and fireworks! Goddie and Nanny came too. The food was so yummy...of course Isaac only wanted a snowball. Isaac had fun playing on the beach with Nanny. And the fireworks were beautiful too!

Fourth of July Weekend!

This year for the Fourth of July, we spent a lot of day with family. On Sunday we had a BBQ at my cousin's house. Isaac played in the pool with his cousins and daddy got to go frogging! (Funny story).

Isaac giving Marley a kiss

They were buddies that day!

The next day we went out on the boat with Tat, Omi, Goddie, and more cousins! We were in Slidell this time. We had a blast :)

Being our navigator

Cheese!!

Happy Fourth!

Hope everyone had a great Fourth!! We had a relaxing day and then took Isaac to see fireworks for the first time with Nanny, Poppy, and his Goddie. He loved them!

Fourth of July

So this Fourth of July was Isaac's first and we had a blast! We went to the lakehouse in Austin with family and friends. We even brougth Molly along. We had a blast and it was great to spend time away from home with people we love!

Summer and "Wolly"

The view from the lakehouse...the water is pretty low

Isaac's first trip on a boat

All the kids in their holiday outfits (my copy came out blurry)

Our family relazing on the lake